We went in yesterday 03/25/2010 to get our final decision on whether we'd want to do dialysis at home (peritoneal dialysis) or do the regular at the hospital (hemo-dialysis). Here is a description of both Dialysis. For us it's a tough decision and we will do only what's best for our son. Everything will take approximately a month to get it started. We were given a lot of information to read about and discuss at home, it was stressful. The doctor said he would be on dialysis for at least 6 months to a year and also depending on the kidney donor or transplant list. He has to weigh at least 30 lbs. Which he will get there soon. Ray has no idea what he is in for but we were at Texas Children's looking at all our options and I think he will do good, my tough little man. It worries me and makes me sad, no small child should have to go through this at a young age. But I am glad he is not the only one going through this. At Texas Children's we saw many kids (young and older) that seemed to be doing okay. We are leaning more on going ahead and doing the dialysis there at the hospital because it will only be three times a week for about 5-6 hours and Danny and I can relate to the other parents there. If we choose to do the PD at home we would have to do it every night for 8-9 hours, I don't want Ray to be put through that everyday. But for now he is still very active, playful, adorable and cute as ever.
We went in yesterday 03/25/2010 to get our final decision on whether we'd want to do dialysis at home (peritoneal dialysis) or do the regular at the hospital (hemo-dialysis). Here is a description of both Dialysis. For us it's a tough decision and we will do only what's best for our son. Everything will take approximately a month to get it started. We were given a lot of information to read about and discuss at home, it was stressful. The doctor said he would be on dialysis for at least 6 months to a year and also depending on the kidney donor or transplant list. He has to weigh at least 30 lbs. Which he will get there soon. Ray has no idea what he is in for but we were at Texas Children's looking at all our options and I think he will do good, my tough little man. It worries me and makes me sad, no small child should have to go through this at a young age. But I am glad he is not the only one going through this. At Texas Children's we saw many kids (young and older) that seemed to be doing okay. We are leaning more on going ahead and doing the dialysis there at the hospital because it will only be three times a week for about 5-6 hours and Danny and I can relate to the other parents there. If we choose to do the PD at home we would have to do it every night for 8-9 hours, I don't want Ray to be put through that everyday. But for now he is still very active, playful, adorable and cute as ever.
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