Hello everyone. Just here to say how blessed and thankful I am to everyone who has helped out through our journey with Ray. I am so proud to wear GREEN in honor of my son who on June 16, 2013 became a Kidney Transplant patient. Our over all experience is amazing. We've had our ups and downs but I wouldn't trade it for anything. As a first time parent I'd say my husband and I have done an incredible job. Everything seemed so scary and crazy but with patience and our faith I am constantly thanking #OURLUCKYSTARS. Nobody prepares you for when you have a sick child, you just have to take it one day at a time. We've been through many hospital visits, worries, emotional feelings. But as I promised my son I will walk with you through it all, so I had to stay strong. Very strong indeed and it will continue. Having a kidney transplant doesn't mean you are completely cured because this can happen all over again. There is still chance of rejection or severe illness causing my son to be back on dialysis and be active on the kidney transplant list again. So as long as I am here I plan to keep track of his medications, medication times and hopefully he will have a prolonged period with his kidney (turbo). So far all is well but that can change anytime. So I try to keep him really close to me at all times. I have become a parent who now stays home and rather spend as much time with my son because life has its tricky ways of surprising you. Many people asked like I did if he would ever receive a kidney I had my doubts about this whole dialysis/transplant situation. But let me let everyone know it does happen when you least expect it, you will get that phone call and when you do be prepared for an emotional and crazy little ride. Ray was admitted on 6/16/2013 and was released from the hospital on 7/1/2013 and everything was different...no more Friday shots(epogen), no more dialysis machine or beeping at night. He was finally free to do a lot of things like sleep on our bed with my hubby and I. Seriously people it was just the simplest easy small things that we are so blessed to be able to experience. HE IS A NORMAL 7 year old child now. Spoiled? Of course. Even with everything we've been through I would never change or take back anything. Let me say this child of mine was ill through 6 years of his life but there is something bigger than us because he is so lucky in many ways. He doesn't understand at the moment but hopefully one day he will and also may his luck continue for so many years to come. I have received and did many cool things because of him. One example: people will buy him something at the store when I've said no or maybe he just win people's heart. He is a sweet little boy. These days I spend my time looking up at the sky and thanking my angels in heaven who keep an eye out for us. They never leave and I am so blessed #mom #dad and our #donor...many many thanks!
My Ray of Light Fund was set up awhile ago for the purpose of anyone who was interested in donating anything through Paypal (anything helps.) It will always be functioning so if anyone wants to donate for his birthday, help with medication cost, parking at Texas Children's hospital, christmas or just to be kind. Click on the link above.
Thanks a bunch for reading and following us with this journey, more to come so check back soon.
Maria Ray and DR
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