my Ray of Light Fund

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Hello everyone. Just here to say how blessed and thankful I am to everyone who has helped out through our journey with Ray. I am so proud to wear GREEN in honor of my son who on June 16, 2013 became a Kidney Transplant patient. Our over all experience is amazing. We've had our ups and downs but I wouldn't trade it for anything. As a first time parent I'd say my husband and I have done an incredible job. Everything seemed so scary and crazy but with patience and our faith I am constantly thanking #OURLUCKYSTARS. Nobody prepares you for when you have a sick child, you just have to take it one day at a time. We've been through many hospital visits, worries, emotional feelings. But as I promised my son I will walk with you through it all, so I had to stay strong. Very strong indeed and it will continue. Having a kidney transplant doesn't mean you are completely cured because this can happen all over again. There is still chance of rejection or severe illness causing my son to be back on dialysis and be active on the kidney transplant list again. So as long as I am here I plan to keep track of his medications, medication times and hopefully he will have a prolonged period with his kidney (turbo). So far all is well but that can change anytime. So I try to keep him really close to me at all times. I have become a parent who now stays home and rather spend as much time with my son because life has its tricky ways of surprising you. Many people asked like I did if he would ever receive a kidney I had my doubts about this whole dialysis/transplant situation. But let me let everyone know it does happen when you least expect it, you will get that phone call and when you do be prepared for an emotional and crazy little ride. Ray was admitted on 6/16/2013 and was released from the hospital on 7/1/2013 and everything was different...no more Friday shots(epogen), no more dialysis machine or beeping at night. He was finally free to do a lot of things like sleep on our bed with my hubby and I. Seriously people it was just the simplest easy small  things that we are so blessed to be able to experience. HE IS A NORMAL 7 year old child now. Spoiled? Of course. Even with everything we've been through I would never change or take back anything. Let me say this child of mine was ill through 6 years of his life but there is something bigger than us because he is so lucky in many ways. He doesn't understand at the moment but hopefully one day he will and also may his luck continue for so many years to come. I have received and did many cool things because of him. One example: people will buy him something at the store when I've said no or maybe he just win people's heart. He is a sweet little boy. These days I spend my time looking up at the sky and thanking my angels in heaven who keep an eye out for us. They never leave and I am so blessed #mom #dad and our #donor...many many thanks!

My Ray of Light Fund was set up awhile ago for the purpose of anyone who was interested in donating anything through Paypal (anything helps.) It will always be functioning so if anyone wants to donate for his birthday, help with medication cost, parking at Texas Children's hospital, christmas or just to be kind. Click on the link above. 

For any questions contact me through Twitter or FB

Thanks a bunch for reading and following us with this journey, more to come so check back soon.

Maria Ray and DR

Happy 7th birthday Ray

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It has been 7 years since this little boy came into my life our world. Thank you for making motherhood so easy and fun each day.

My message to you my little man from FB:

At 12:19PM 7yrs ago my son Ray was born. I am so proud that you are mine. My greatest accomplishment thank you for taking me through an incredible journey. We've had our ups and downs but we are so blessed through it all. I will always be beside you in everything you do, so don't be afraid. You make me feel the best feeling ever. You are a cool sweet cute smart and amazing little boy...keep at it! #teamRay

Ray had so much fun, his birthday weekend included dinner at El Palenque(Panchito) and cool Monster Jam gifts at midnight, a Blue Velvet cake with Butter Cream frosting, early lunch at TGIF's, his cousin's Sweet 15th and a few cool gifts from his aunt/godparents. Overall a fun birthday. Here are a few pictures of his special day.

Update 02/26/2014

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A lot has happened Ray started 1st grade on 8/26/2013 and is in Mrs. Jackson;s class. He has learned so much like how to tell time, spelling and some math. He is doing very well.

He also went to Monster Jam with his dad, he has been into trucks and cars lately.

He also got a puppy named Dusty before his surgery he wasn't able to. 

All is well in his health also, We go back to his doctor's appointment on March 19th. He has grown so mych and is expanding his learning abilities. He is not a shy person anymore he dances, sings and will talk so much about anything. Thanking our beautiful angels (x3) mom dad and donor for all of the great blessings with Ray and our family.His appointments are now every 2 months and labs are on a monthly basis.

Thank you for keeping up with Ray and walking through with his journey.

xo, MM

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A day with Big Time Rush

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#BTRTour2014Houston

These four guys are amazing, talented and so much more. Thank you for helping my son Ray get through all his battles with your music. That day you all made him smile so much by autographing his shirt. Since his kidney transplant all he wishes to do is sing and dance like Big Time Rush.

Because of him my husband and I have become your fans. We are in our 30's and I am proud to say I am a BIG TIME RUSH fan #rusher thanks for all the great memories. We have been fans since 2010 and I am so amazed at your guys being great role models. I also think you all deserve more recognition. I love your songs and have great voices. I had to get VIP passes because on June 28th he was in the hospital due to him getting a transplant making him miss the 2013 Summer Break tour. It was totally worth it, another overall experience. It never fails.

Thank you to @kendallschmidt for the guitar pick.

Also that night my son wanted to say hi to @oliviasomerlyn a quick thank you to the security guard there at Bayou Music Center for allowing my son to go in line before many others to take this picture.As an opening act she did amazing.

Day of Texans football - Texans VS Cowboys

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We had so much fun, had planned this trip since January 2013. Ray is such a Texans fan. Here are a few pics from his journey to his first Football game. It was fun and I didn't think he would manage on our 15 hour round trip. 

 

Ray gets a new Room, Thanks MakeAWish Foundation

Click here to donate to MyRayofLightFund. and Make A Wish will receive a $1 a person from your donations.

A little while ago our doctor had asked us a few questions about Ray regarding Make A Wish, a foundation that grants wishes for critically ill children. I didn't know what it was until our case worker at Texas Children's hospital told us about it and she referred us. Then in June Ray received a Kidney Transplant and although many might think that it's not critical, it is. Ray (as well as we do) fights every day making sure he doesn't reject his new kidney named Turbo. He is our little warrior.  That day was very special because Ray was treated like a king he was picked up by limo at his school and taken to Chuck E Cheese's. We are so blessed is what everyone says but please remember that he struggles everyday to maintain his health. He is fine for now and looks great. His kidney is functioning well. Also no one knows all the things Daniel and I do for him daily. We are constantly making sure he has his medications on time, a critical thing to keep on doing to keep his kidney alive. We take him to his doctor's appointments (now every 3 weeks and every Sunday for lab draws).

 Here are a few vids and pics of his special day, enjoy!

A big thank you to MakeAWish, Ikea, Spring Carpet, New World Improvements and our limo driver Pam.

We need all the help we can get, pass the word.

Donate now to the #myrayoflightfund. This helps us out with our sons daily needs + his doctors visits - parking. Pass the word around. - Thanks.

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As you all know we have been here since June 16, 2013 and we are so blessed to be here. But now that we are going home with all this we are going to go through a struggle because of his monthly medications, gas and doctor's weekly visits. Daniel is on FMLA but will have to miss work without pay. I don't ask for much but just anything you can donate to help us get through this small struggle. We will be back on our feet soon. This all just happened so unexpectedly
.

A big thanks for all of your help and continued support.

And to everyone passing the word. THANK YOU!!

**We are now out of the hospital since a week ago but still have to pay for parking and gas now that we go to Texas Children's hospital every two days for lab work and follow up appointments.